Dancing with Dementia: My Story of Living Positively with Dementia
by Christine Bryden Jessica Kingsley Publishers
- Pub Date:
- Pbk 200 pages
- AU$36.99 NZ$38.25
Product Status: Out of stock. Not available to order.
Christine Bden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Since then she has gone on to challenge almost every stereotype of people with dementia by campaigning for self-advocacy, writing articles and speaking at national conferences.
This book is a vivid account of the author's experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help.
Christine Bryden makes an outspoken attempt to change prevailing attitudes and misconceptions about the disease. Arguing for greater empowerment and respect for people with dementia as individuals, she also reflects on the importance of spirituality in her life and how it has helped her better understand who she is and who she is becoming.
Dancing with Dementia is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.
Preface. 1. A 'Roller-coaster' journey since early 1998. 2. 'Coming out' with dementia. 3. Let's talk about having dementia. 4. I know who I'll be when I die. Afterword. Appendix 1. Do you believe in miracles? Appendix 2. Frequently asked questions. Appendix 3. Where to go for help. Endnotes.
The book is clear and engaging. It is written in a combination of plain English and technical terminology that has clarity, but remains non-patronising and easy to read. It challenges the way any professional in this field may view dementia and leads the way in suggesting there are positive things that people can achieve, and that there should be a focus on what the person with dementia is becoming, rather than the skills they have lost… a valuable introduction to dementia for the recently diagnosed and their families. It would also be a useful introduction to an occupational therapist new to this area of work. It is also an inspiring and motivating read for anyone working in this field.
Christine Bryden has worked in the pharmaceutical industry and as a senior executive in the Australian Prime Minister’s Department. Following her diagnosis with Alzheimer’s Disease in 1995, she has been instrumental in setting up local support groups for people with dementia and has addressed national and international conferences. In 2003 she was the first person with dementia to be elected to the Board of Alzheimer’s Disease International. Her first book Who will I be when I die? was published in 1998 and has been translated into several languages. She lives in Brisbane, Australia.