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Palliative Care for Advanced Alzheimer's and Dementia: Guidelines and Standards for Evidence-Based Care

by Gary Martin and Marwan Sabbagh Springer Publishing Company
Pub Date:
Pbk 350 pages
AU$114.00 NZ$117.39
Product Status: In Stock Now
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2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! 'This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt.' -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life

Acknowledgments xvii Section I: Introduction to Professional Management of Advanced Dementia 1. Determining and Defining Advanced Dementia 2. The Continuum of Care 3. Caregiving Section II: Protecting Dignity for the Patient with Dementia: Establishing an Environment and Caregiving Standards 4. Personhood 5. Creating the Optimal Milieu for Care 6. Managing Behavior Problems Associated with Advanced Dementia 7. Assessing and Addressing Pain 8. Ensuring the Appropriate Use of Medications in Advanced Dementia Section III: Managing Activities of Daily Living 9. Eating and Nutrition 10. Dressing and Grooming 11. Bowel and Bladder Management 12. Ambulation and Mobility 13. Bathing Section IV: Providing for Other HealthCare Needs 14. Activities Programming 15. Cultural Diversity 16. Healthcare Decisions for Advanced Dementia 17. The Continuum of Grief 18. Establishing Healthcare-Related Legal Options for the Vulnerable Patient Glossary Appendix A. Professional and Caregiver Resources for Advanced Dementia Appendix B. Cultural Resources on the Web Appendix C. Federal Guidelines for Providing Culturally Sensitive Care Appendix D. Cultural Heritage Assessment Form Index

Gary Martin, PhD, is a Licensed Clinical Psychologist and a Geriatrics and Long Term Care Specialist who is an owner of Integrated Geriatrics Behavioral Health Associates, PA, an incorporated behavioral health provider group in Scottsdale, AZ. Dr. Martin is the Clinical Director of several retirement and assisted living communities in the Greater Phoenix area. In addition, he is the Clinical Director of fourteen LTC-based specialized Behavior Units and eleven specialized Dementia programs in the Greater Phoenix area. His areas of specialization include: program development for dementia care programs and behavioral treatment programs for high acuity patients in LTC settings; staff training, palliative care, and clinical oversight for persons with dementia; consultation with nursing homes, assisted living facilities, families, and other caregivers on treating older adults; and the education and training of health care professionals, physicians, social service staff, and medical and gerontology students in the field of clinical gerontology. Dr. Martin is the recipient of numerous awards, including the Outstanding Community Service award from the Arizona Alzheimer's Consortium, Provider of the Year award from the Arizona Business Journal, and several Best Practices Awards from Arizona nursing home advocacy groups. Dr. Martin serves on the Board of Directors of the Alzheimer's Association, Desert Southwest Chapter, and is affiliated with the APA, GSA, Psychologist in LTC (founding member, 1984). Marwan N. Sabbagh MD is a geriatric neurologist and dementia specialist; he is one of the leading experts in Alzheimer's disease research nationally. Dr Sabbagh received his bachelor's degree in Physiology at the University of California-Berkeley in 1987. He went on to the University of Arizona, College of Medicine in Tucson, AZ where he received his MD in 1991. He completed a neurology residency at prestigious Texas Medical Center and Baylor College of Medicine in Houston, Texas in 1995. From there, he underwent additional training in dementia/geriatric neurology training at the University of California-San Diego. Then, he served on the faculty at UCSD as assistant professor in the department of neurosciences. In 2000, he was recruited to Banner-Sun Health Research Institute to be the founding director for the center for clinical research. Since, becoming the director of the Cleo Roberts Center for Clinical Research at Banner-Sun Health Research Institute, Dr Sabbagh has conducted over 80 clinical trials and clinical research studies in Alzheimer's disease and other brain degenerative and medical conditions including being the site Principal Investigator or national principal investigator for several prevention and treatment trials for Alzheimer's disease. He serves on the board of directors for the Desert Southwest chapter of the Alzheimer's Association. Dr Sabbagh has authored or co-authored over published 100 article, chapters and abstracts in Alzheimer's disease research including in respected medical journals such as Neurology, Archives of Neurology, Journal of Alzheimer's Disease, Alzheimer's disease and Associated Disorders, Proceedings of the National Academy of Sciences, Current Alzheimer's Research and most recently in the New England Journal of Medicine. He serves as senior associate editor for the Journal of Alzheimer's Disease and Clinical Neurology News and BMC Neurology. Dr Sabbagh has authored the critically acclaimed book The Alzheimer's Answer: Reduce Your Risk and Keep Your Brain Healthy. Dr Sabbagh has also been a prominent featured speaker on Alzheimer's at many regional and national conferences