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End of Life Care for People with Dementia: A Person-Centred Approach

by Laura Middleton-Green, Jane Chatterjee, Sarah Russell and Murna Downs Jessica Kingsley Publishers
Pub Date:
Pbk 176 pages
AU$42.99 NZ$43.47
Product Status: Available in Approx 14 days
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People with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals working with them. This book describes not only what can be done to ensure maximum quality of life for those in the final stages of the illness, but also how best to support those involved in caring for them.     


Emphasising the importance of being attuned to the experiences and needs of the person with dementia, the authors explain why and how they should be included in decisions relating to their end of life care. Practical strategies for ensuring physical and emotional wellbeing are provided, drawing on useful examples from practice and providing solutions to potential challenges that carers and family members will face. Dilemmas surrounding end of life care are explored in detail, including the moral dilemma of medical intervention, and the authors suggest ways of supporting family members through the process in terms of providing information, helping them adjust to change and loss, and involving them in their relative's care, and at how care staff can be supported through appropriate education and training, team building and information-giving.     


This is an essential resource for anyone who wishes to provide compassionate, person-centred care for a person with dementia as they approach the end of life, including care staff, nurses, social workers and related professionals.


Foreword. 1. End of Life for People with Dementia and their Families: An Introduction. 2. Choice and Decision-making at End of Life. 3. Promoting Dignity and Physical Wellbeing at the End of Life. 4. Promoting Dignity and Emotional Wellbeing at the End of Life. 5. Dilemmas of Care.6. Supporting Families through End of Life. 7. Supporting Care Staff for End of Life Care. 8. Policies and Protocols for End of Life Care. References. Index

There are lots of books being published about dementia right now and most do add value to the body of literature available but not all are as readable and accessible as the new offering from the University of Bradford's School of Dementia Studies. [...] Murna Downs and her team should be commended for this book [...].
Murna Downs is Chair of Bradford Dementia Group at the University of Bradford, UK.


Laura Middleton-Green is a lecturer in palliative and end of life care at Bradford Dementia Group, University of Bradford, UK.


Jane Chatterjee is a Practice Educator/Lecturer at St. Gemma's Hospice, Harrogate, UK.