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Intellectual Disabilities and Dementia: A Guide for Families

by Karen Watchman Jessica Kingsley Publishers
Pub Date:
Pbk 120 pages
AU$31.99 NZ$33.90
Product Status: In Stock Now
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Drawing on the author's first-hand experiences with families, this book provides crucial, accessible information and answers the difficult questions that often arise when a family member with an intellectual disability is diagnosed with dementia. Linking directly to policy and practice in both dementia and intellectual disability care, this book takes an outcome-focussed approach to support short, medium and long-term planning. With a particular emphasis on communication, the author seeks to ensure that families and organisations are able to converse effectively about a relative's health and care.


The book looks at how to recognise when changes in the health of a relative with an intellectual disability could indicate the onset of dementia, as well as addressing common concerns surrounding living situations, medication and care plans. Each chapter is structured to identify strategies for support whilst working towards outcomes identified by families as dementia progresses.


1. Recognising changes in health.

2. Strategies for support.

3. How to talk to a relative about their changing health and about dementia.

4. What will happen in the future?

5. Conclusion. Further information.

[...] books like this and the information they contain are crucial. [...] It is essential that we raise awareness of the potential links between dementia and learning disabilities so that people and their families get the information and support they need. This book is an excellent example of how to do this.
Karen Watchman is a Senior Lecturer in Dementia and Deputy Director at the Alzheimer Scotland Centre for Policy and Practice, University of the West of Scotland, UK. With a PhD in Down syndrome and dementia plus a previous post as Director of Down's Syndrome Scotland, she has experience of providing support, education and training in both intellectual disability services and dementia care. Karen has ongoing contact with, and is ageing alongside, people with Down syndrome and their families which has resulted in this book being written to address frequently raised issues. She lives in Clackmannanshire, Scotland.